Jan 15, 2019
Johnna Hensley is someone who I
immediately liked when I met her. She's super kind. She laughs at
my jokes. She's easy to talk to. She's a good listener and a deep
thinker. She also loves her family fiercely. Johnna and her husband
Ryan have three children. One of them is special needs. She is a
mother living in two different worlds right under the same roof. I
wonder how she does it. I'm so excited to have Johnna on the show
to find out.
Johnna Hensley is a native
Texan, a writer, and a lost sinner who found hope and redemption in
Jesus. She is the wife of an energetic and giving man, and a
homeschooling mother to three wild and sweet little boys. Her life
is nothing as she expected it would be, but finding beauty in the
broken is what makes it worth living.
You can find Johnna Hensley here:
JohnnaHensley on Instagram
- [04:12] Johnna made a video
with her son Hayden. They did a CrossFit parody.
- [07:28] Johnna's son Hayden has
spina bifida and he has a tracheotomy to breathe.
- [07:40] He sleeps with a
ventilator at night.
- [09:00] Johnna and Melissa went
on a hayride.
- [09:58] Johnna has three boys.
She took her sons to a pumpkin patch. She carried Hayden to the
hayride. His issues are physical, but his mind is on
- [15:27] At about 18 weeks, they
found out there might be a problem with their baby. He had spina
bifida which means the spinal cord did not close all the way.
Johnna and Ryan were 24 years old. Their entire world crashed into
- [19:57] We declared that this
doesn't change anything and we aren't going to treat him
- [21:35] Johnna was against
having more kids. She heard from God that what ever baby he gave
her it was his glory not hers.
- [23:20] She had her second son,
and he was perfectly healthy. Her third was her bonus
- [24:54] Raising the boys is
like being in two different worlds.
- [27:14] They booked a Disney
cruise and Hayden was sick. They didn't know what to do. Her
neighbor assured her it was okay to leave Hayden and take the other
kids on the cruise. She felt really guilty. Then they actually had
- [30:07] It's challenging for
Johnna and her husband to make sure that they are doing enough for
- [33:01] There can be resentment
for some of the children. Sibshops helps siblings of special needs
kids. There is a camp for siblings of special needs
- [35:01] Now that Hayden is
older, he is honest about how he feels about the
- [39:16] There was a time when I
was taking things out on Ryan. Then we implemented Sunday family
meetings and lay everything out so that the logistics are all on
- [40:32] We have a night nurse
that comes in at 7 pm. It's kind of weird trying to catch up on
your day when there is someone else in your home.
- [42:06] It's challenging for
Johnna to have other people in her home when she is trying to
unwind. It's something she's still getting used to.
- [42:37] Johnna and Ryan
understand each other on a level that will never change. There are
some things no one else will ever get.
- [44:16] To keep the romance
alive Johnna and Ryan also tried Date Night In which was a gift
from a friend.
- [46:15] Johnna goes to the
school answers questions about Hayden's condition, and she is
writing a book. They decided to be real honest with the kids and
get it all out in the open.
- [47:57] It's perfectly lovely
for a child to ask Hayden his name and ask what is the story with
- [49:22] Hayden has taken Johnna
out of her comfort zone. She calls him the VIP.
- [51:35] Mom's struggling, need
to find their tribe, even if it is through a Facebook group.
Special needs parents just get it.
- [54:48] Being a special needs
mom is like canoeing up your driveway every day while everyone else
gets to drive. Sometimes you need to throw a special needs mom a
paddle and help them.
- [55:42] A friend inviting
themselves over for game night is one of the nicest things that
someone has done.
- [59:54] Johnna answers
Melissa's lightning round questions.
Thanks for joining us on
Ordinary People Ordinary Things. Be sure to
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